So many things to be thankful for today. First and foremost, Nathan came out of surgery safely and it was very successful! According to his team of doctors, “there’s loads of space around his brain now.” Another huge gift was that Jonny and I were able to find an atrium between the hospital and the medical towers where we were able to meet up and be together today. Physical nearness can be such a relief... At the end of the surgery, Jonny told me he was just going to walk with me as far as he could go. We were outside the PICU when the doctors came out so we were both able to get the report from them together. Then, because no one else is here (literally) they said he could come and just see him for a minute but would then need to leave. Needless to say- Jonny was one happy dad. Nathan is mostly sleeping and only waking to thrash around and tell us “it hurts” right now but that was to be expected. Since they worked mostly on the to...
The time we knew would come has come and it has come at a very inconvenient time! THE FACTS: So, one of the deals with Apert Syndrome is that well, it's a syndrome, which is kind of like a gift that keeps on giving... If you're newer to our family or have never really known what or how to ask about Nathan there's a quick synopsis on one of the other tabs of this super fancy blog;) (BTW, any questions that asked respectfully are welcome and encouraged by our family at any time!) Nathan's body is like a bone-making-factory, only it creates bones at speeds and shapes that effect him in pretty serious ways. One area that's dramatically effected is his skull. Essentially, the way the bones fuse in Nathan's skull make it impossible for his brain to grow in a safe and healthy way without major surgical intervention. And because it's a syndrome, it's not one-and-done surgery. Here are a few pics from the last time he had surgery on hi...
This was one of those weeks where time was elusive as it simultaneously crept along and caught us up in a whirled. The Timeline Monday morning, May 6th, I awakened early and read a devotional entitled, “Do the Next Thing.” It perfectly resonated with my paradoxical emotions. I dreaded the 7th, I wanted to hurry up and get to the 7th, most of all, I desperately wanted to be on the other side of the 7th with my son in my arms. May 7th was so intense. In God’s mercy, Nathan was as cool as a cucumber, and the four of us had a small posse with us in the waiting room along with a swarm of texts, pictures, etc. of friends in red, bible verses, prayers and well wishes. To say we were being upheld is an understatement. The surgery was supposed to be about 5.5 hours, and we got the typical text updates the first few hours. When Jonny’s phone rang with a call from the O.R. after just over 3 hours, the conversations around me faded to the margi...
Thanks for posting this video Jen - she is an adorable little lady! -R&S
ReplyDeletelove the commentary :)
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