It's that time of year...

Hello Friends and Family!

2017 is starting out in full swing for getting Nathan settled into some new routines of care and we want to make sure to keep everyone updated on the significant things happening.

In January he was re-evaluated for Physical, Occupational and Speech services and as he is still showing delays in each area he will be continuing to receive each of those therapies weekly.  PT and OT have already begun and we are still waiting on Speech to be approved/processed through insurance.  Please join us in praying for that to move along quickly as that is probably his most significant delay and the one that most drastically effects his social interactions at this time.

Valentine's Date Night (Feb 14th) Nathan is having a sleep study done.  If you've been following his story for a while, you may recall that he has these on an annual/bi-annual basis.  The sleep study, MRI's and eye exams are three of the main factors used to determine the amount of pressure being put on his brain and when surgical intervention will be needed.  It could also indicate that he needs to sleep with supplemental oxygen at night (which he has done before.)  Our best guess is that this study will show "No Change" and that his next skull surgery is still a few years off <fingers crossed.>  Jonny and I have both had the flu and upper respiratory infections so my mom volunteered to spend the night with Nathan for the study.  This is a huge gift to us and honestly, I think he's convinced he's getting special "Nonni and Nay Nay" time at a special hotel! :)

February 27-28 - These days will be filled with appointments with several specialists over in Dallas and will be capped off with our annual visit with Dr. Fearon.  Along with the recommendations from the other doctors, we plan to discuss the possibility of having surgery on Nathan's feet sometime this year.  As he continues to grow, several of his toes are continuing to grow in a way that is causing more pain, damage to his skin, etc.  Please pray for clarity and unity during these appointments.  

At the risk of sounding like a broken record... Jonny and I are just so continuously amazed and humbled by the army of people who have rallied around us in prayer and support as we hit each new phase of the marathon of Nathan's needs.  Last month, my dad was in India and over a dozen men and women asked about Nathan by name as they have been praying for him for years...  (enter: tears.)  Additionally, many of you have continued to make donations to the Norman Family Trust, which continues to be a significant, tangible way the Lord is providing for us.  As healthcare continuously changes and Nathan continues to require so many tests, surgeries and therapies each year...  a lump is forming in my throat as try to express on this silly blog how much it means to us that so many of you have a tangible piece in each victory/milestone.  When I see him eat, hear him talk, watch him play, watch him accomplish something new and sing "I did it!  I did it!"...  I see so many of your faces, feel your hugs, hear your prayers...  Thank you.

We will be sure to update after our appointments at the end of the month.  

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