Norman Family Trust

Family, Friends and Prayer Warriors for Nathan Norman:


Thank you for your interest in helping the Norman family! As many of you already know, Nathan Edward Norman has a rare genetic disorder called Apert Syndrome, which occurs in about 1/200,000 people. Certain bones (hands, feet, skull, and facial) stay fused together as they develop in the womb.  Over the past 9 years, Nathan has had dozens of surgeries along with countless therapies in an effort to ensure safe brain development, correct major digestive issues and maximize the functionality of his fingers and toes.  On average, those with Apert syndrome may have upwards of 20 surgeries by the time they are 21.  

The Norman Family Trust was established by friends and is governed by a Board or Trustees as a way of helping provide for the over-and-above medical care and expenses the family has and will occur as they care for Nathan.  


From Jonny and Jen - "The Trust has enabled us to give Nathan the best care possible which literally would not have been the case without your support.  God has provided some through our work, some through health insurance, but we have been so humbled to watch God provide for the financial part of our journey with Apert Sydrome through your generosity.  Thank you from the bottom of our hearts!"


As of December 1, 2022 the projected medical care for Nathan over the next 5 years is just over $57,000.


Would you prayerfully consider making a contribution to The Normans Family Support Trust to assist with the upcoming expenses?


You can donate by making a check out to "The Norman Family Support Trust" and mailing it to:


                                                        Riverwood Community Chapel

                                                        1407 Fairchild Ave.

                                                        Kent, OH 44240

                                                        ATTN: Cindy Bowser


Please note that contributions to the trust are not considered tax-deductible contributions.  Furthermore, as to not incur fees to receive these funds, we are not currently making an online donation option.  For those that don't have paper checks to send, we as that you set up "The Norman Family Support Trust" as a vendor on your personal bank's online payment option and have them mail a check to the address above. 


When making a donation, the Normans will not be given details concerning the dollar amount of your donation.  However, they have asked to be advised of the name and contact information for each donor so they can thank you directly and keep you up to date on Nathan and their family. 


Please know that as the trustees of the Norman Family Support Trust, we will honor your generosity by wisely and carefully using these funds to help the Norman Family as they care for Nathan now and in the coming years.


With gratitude,

Paul Grater                                    Joyce Tawney                            Tim Ulbrich

Trustee                                           Trustee                                       Trustee



Comments

  1. CharFebruary 6, 2014 at 11:19 PM

    I am the widow of a vet and don't have much to share but I will pray for God to send you a special benefactor to take care of financial needs. There must be some help out there somewhere. I love to do research so I will look for help on your behalf!

    ReplyDelete

Post a Comment

Popular posts from this blog

Surgery in T-Minus 5 Weeks

Image
I’m not exactly sure what it is about me, but I just have not been able to bring myself to write this update.  It’s almost like a subconscious rebellion…  We’ve known this day would come since we were in the NICU in Ohio…  We thought it would come last year… And yet, the fact that it is finally time for the MOST major surgery/medical procedure in a series of major medical procedures is just a bit surreal.   As of this moment, May 7th is Go Day.   Just a dude and his dog :) This post will be pretty factual as I am still processing a lot of my own emotions.  At the same time, I am humbled and thankful to my core for the army of people who have and continue to love and pray for Nathan and our family.  There is only one path ahead for my son, for my heart, for our family.   In light of that, we want to share and ask for your prayers. On May 7th, Nay will have a RED device installed into/onto his face.  RED stands for Rigid External Distraction - You can click here to get a bunch of images
Read more

It's Been a Decade

Image
Some memories are sharper than others… February 9th, 2014 was my 29th birthday and Nathan was in the middle of a 7 consecutive week run in the ICU, for most of which he was intubated.  About 80% of his 4 months had been spent in hospitals and he had already undergone several surgeries of increasing intensity.   This stay was, quite literally, a fight for his life and the questions about quality of life were (understandably and appropriately) met by Dr’s with vague answers, no promises and even uncomfortable and compassionate murmurs of “IF he makes it past 2….”     That year, my birthday fell on a snowy Sunday.   I remember waking that morning and staring blankly out of the ICU window into the thick, cold, grey, relentless snow of an Ohio February.   The only thing more bleak was my heart as I called Jonny, cried and then let him go so that he could take care of Madison (not yet two) and then get to church…. It was, after all, a Sunday.   I’m not sure how much time passed, but it could
Read more

You Are Loved and You Were Wanted

Image
Little One, You are loved and you were wanted .  Let’s start there.  Your dad and I talked about you for quite a long time, actually.  After the first year/year and a half of your brother’s life and the intensity of fighting for both his life and quality of life it took more time, more conversations, more prayer to be sure that we were ready for a third child in our family.  Then, in ways that are more easily felt than articulated we both sensed a confident assurance that yes indeed, we were ready.  And so when a little plastic stick told us of your existence, we were ecstatic! The first time we saw you on a little screen we marveled and our vision blurred with rejoicing as we saw your little, tiny heart beating fast.  We knew how deeply we love your big sister and brother and instantly our hearts expanded as they filled with that same love for you.  Telling your 3 year old sister you were coming was pure joy!  She was so excited!  In fact, she would tell everyone (cashiers, stra
Read more